Here are some resources that we have found helpful. We will also post local resources that offer support to families of preemies.
National Organizations that Support Preemies:
March of Dimes
The March of Dimes Foundation's mission is help moms have full-term pregnancies and research the problems that threaten the health of babies. Check out their website for research and tips.
National Perinatal Association promotes the health and well being of mothers and
infants enriching families, communities and our world.
of our foundational belief in Jesus Christ, the mission of Eli's Hope is to
bring hope to families who have a child in the Neonatal Intensive Care Unit by
meeting some of their practical and spiritual needs.
provide coaching-based emotional support during the long-term, ongoing
transitional phase of post-NICU for parents of children born prematurely,
children who are sick/medically vulnerable and parents of children with special
Our mission is to help parents, post-NICU, reach a point of
clarity, direction and optimism for their lives in the midst of their unique
We also provide support to organizations and medical
and social service staff who serve these families.
Fragile Beginnings Preemie Parent Alliance
mission of the Fragile Beginnings Preemie Parent Alliance is to improve the
lives of parents of premature infants throughout New England through direct
support services, educational materials, and by connecting parents to community
resources and to each other. We are guided by the principle that the families of
preemies strongly benefit from parenting support beginning in the hospital,
during their transition home, and throughout their preemie’s developmental
offer both practical and emotional support to parents of extremely premature
babies. The foundation supports the parents by sending care packages to them
during their journey in the NICU, and the foundation's website provides a place
for parents to share their stories and find support.
Hand to Hold
provide comprehensive navigation resources and support programs to parents of
preemies, babies born with special health care needs and those who have
experienced a loss due to these or other complications.
Holding Tiny Hands
Tiny Hands provides a continuum of support to parents of premature or
chronically ill infants beginning in the NICU, throughout discharge, and
Papas of Preemies
Of Preemies is currently a community page on Facebook lending support, resources
and advice for prematurity from a dads perspective. I have guest contributors
and I am working to make fathers a more prevalent part of the NICU picture and
bring awareness to all. I am also on a personal note trying to bring more
awareness to Early Intervention as we are beginning the process with our
was created to help bridge the gap between parent and professional in the NICU,
at home and beyond. With books, videos, and other products and tools, the hope
is to make everyone’s life just a little bit easier as the “new normal” is
created in the life of the preemie and his/her family.
Zoe Rose Memorial Foundation
provide help and support to families with babies born prior to 32 weeks through
education, outreach and one-on-one parent support. To provide information and
resources for parents who have experienced a pregnancy or infant
Family Resources and Online Support Groups:
Caringbridge helps families connect with other family members and friends during stressful times. They offer free websites for families to journal and keep in touch with others.
Inspire Online Preemie Support Group
Inspire offers online support for preemie parents all across the country.
Preemies Today is a national preemie support network.
Resources for NICU Parents:
Preemie Prints (NICU Pictures and NICU Grad Pictures)
Based in Texas, Preemie Prints is a 501(c)3 non profit organization dedicated to sharing hope with families experiencing the difficulties of a premature birth through information, photography, gift bags, support, and prayer.
Preemie Prints offers complementary photo sessions for preemie families with preemies under 1 year of age. Check out their website for more info!
Pictures of Hope Foundation (NICU Pictures)
The Pictures of Hope Foundation offer professional photographers to take pictures of your little one while they are in the NICU.
Resources for NICU Grads
Maddie's World sells therapeutic toys for preemies. The toys are designed with preemie development in mind and are BPA free.
Dallas/Fort Worth Resources:
DFW Area Moms
DFW Area Moms is an online network of local moms. Its a great way to find out whats going on in the area and get good recommendations.
I found this clothing store in Southlake Town Square and thought their clothes are super cute. Then I found out they carry preemie clothes in the store! They have some very cute and different outfits for both preemie boys and girls. Their style came from South Africa.
Early Childhood Intervention of Texas
ECI offers services to children under 3 years of age. They offer PT, OT, vision services, speech and lanuage therapy, family education, developmental screening and much more.
Preemie Clothing, Jewerly and Toys:
It's A Preemie Thing
A wonderful website that has fun preemie outfits! Also has a great source of support and information.
Peek A Boo ICU
Thumba-Lea is a blog following micro-preemie, Lea. This is a great resource for other families with micro-preemies. Check their website for giveaways.